Monday, September 22, 2008

Hydrocephalus Association Walk

When we go to Salt Lake every weekend we usually don't have much to do besides go to the Hospital, but this last weekend was packed with lots of fun things to do. On Friday I went and got Brock from work at lunchtime so that we could go to the hospital for awhile that afternoon. Melanie watched Kayden for us while we went. The first thing we always ask when we get there is if we can hold Tyler. It was so nice to be at the hospital together without Kayden. Thanks Melanie. Later that night Melanie and I went to the Scrapbook Expo that was held in Sandy. I have never been before, and boy is it a little overwhelming. We had a great time, and stayed out late giggling and spending time with Melanie's friends. You can bring all of your scrapbooking stuff and stay until midnight and scrapbook, but we decided to just walk around and enjoy ourselves and spend a little money. We got some great ideas for Christmas gifts, that we are excited to work on together. I now am going to save up my money and go back in six months and buy a Cricut. Melanie has one, and I totally love it, and I think it's about time that I get one.


On Saturday we did a walk for Tyler with the Hydrocephalus Association. This is the second year that they have done this. On September 22 of every year is a Hydrocephalus Day in Utah, and the whole month of September is a Hydrocephalus awareness month. I joined this little support group one night when I was in the hospital with Tyler, and I found out they were doing a walk on Saturday, so I thought that it would be neat if I signed our family up to go and walk for Tyler. The association took a picture of all the participants, and then we all walked around Sugar House Park in Salt Lake city. It was a short walk only about 2K because there were a ton of kids that participate. We had a great time and really enjoyed ourselves. We also got to meet other families who have been through the same thing we are going through with Tyler.
About half way through the walk Kayden decided he didn't want to ride anymore, but he wanted to push the stroller. He is a little short for it, so mostly he just hung on while Brock pushed.




When the walk was over we enjoyed a brunch, and then they had a few activities for the kids...face painting and stuffing boozle bears.



Later that day I got a babysitter so that Brock and I could go back to the hospital by ourselves. In the picture above you can see in Tyler's head where the shunt is. Its that big bump on the top.

We sure do enjoy holding our little man, and we can't wait until he is not all attached to cords to hold him.

We came home Sunday night, but I am again returning back tomorrow. Brock will be joining me on Friday, and Kayden will be going with Grandma Ellis for a little while. We hopefully this time can bring Tyler home with us!!!!

5 comments:

The Hemenway's said...

I hope he can come home with you. We are thinking and praying for you. His face is so beautiful, what a sweet boy. Our hearts go out to you, good luck.

Julie said...

That is awesome that you have found a group that can help you. It would be so great if he could come home with you this time. I am sure it is hard to have to leave him there all the time.

Katie said...

I hope he comes home!! He is such a doll and we love him already!

Brooke said...

That is so good you've already started to get involved with other families. We love you guys and keep praying for all of you.

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