This post is all about Tyler. He is such a joy to have in our family. I simply don't take enough pictures of my kids. Tyler has been one of the biggest trials in my life, but also such a HUGE blessing. I can't imagine my life without him. For the last month he has really struggled to breath....kinda an important thing to do. I took him to a Pulminologist at Primary Childrens and he gave us five options. Brock and I have narrowed down those options and we think we have made our decision on what to do next with this little boy. We have decided to do surgery, but it won't be for a little while. We are still trying to get him on medicaid and until then we are trying hard to hold off on any surgeries. Because Tyler can't breath he is up several times a night crying. One night we were up every 20 minutes for about 3 or 4 hours. You can only imagine how tired we are doing this night after night. We take turns with him but sometimes we just have to shut all the doors and let him cry it out. I sure hate to watch him suffer like this. One Sunday morning Brock had been called out to work at about 4am. We had already been up several times with Ty, so Brock was pretty tired when he left. (granted we didn't go to bed until 12 because Brock was on call and had to deal with some problems at work). After Brock left Kayden was up, but he finally fell back asleep in my bed. At about 5 am after being so tired I was up with Tyler again. He was literally gasping for air and I had to make the quick decision whether to get anyone else involved. About a million thoughts ran through my head....the money aspect of calling 911 and being life flighted to Utah, what would I do with Kayden because Brock was gone, what could the EMTs really do for Tyler that I wasn't already doing besides send us to Utah (I already had oxygen on him and that wasn't doing anything) I was bawling and probably delirious with going on several night without much sleep. I finally got Ty to calm down enough to get him in a position where he could breath better. I actually got him to go back to sleep and in turn I went back to bed and Kayden actually slept in that morning which was a huge blessing.
So this is normal now. I hate taking Tyler anywhere because of all the stares we get with his breathing (its like a really loud snore), plus I have to carry him everywhere and he is no small kid. So we spend most of our days at home...playing, reading stories, baking, and most importantly taking a nap!!
Monday, February 1, 2010
All about Ty
at 8:43 AM
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5 comments:
I love the pic in the beanbag chair with elmo!! CUTE!
That was so sweet to read. You guys are amazing. We should finally get together! We dont really do anything during the week! Ky would love it, and me too.
Sarah- what a beautiful little son you have. I loved the hour I was able to spend with him teh other day. HIs spirit is so sweet and so vibrant! I can only imagine the challanges you face daily. But you are as special as he is. He was sent to you for a reason and that is evident every time I see you with him. He's amazing and so are you!
Tyer is getting so big and so dang cute. These night are hard but you are such a strong women you will make it through. I admire you and all you do for your kids. You are such a wonderful person.
You are amazing, seriously. I really look up to you and how you handle everything.
You have a cute little family, I really feel blessed to have got to know you :)
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